Information and Resources


Where to go for Help and Information

There is a huge amount of advice and information available to help families choose the right care option and understand the options available in terms of funding, agency choice and care setting. We also understand that it can be quite daunting and perhaps even frightening when our loved one is diagnosed with a condition that we don’t really understand.

To help families and friends understand what’s available and what is happening to them or their loved ones, we have provided links to useful websites and factsheets sourced from across the UK. By doing so, AccuroCare is hoping to provide a useful service, we do not endorse, support or promote any of the information contained within the documents or websites.

General Support

Funding advice can be downloaded from the government: https://www.gov.uk/apply-direct-payments
or through Hertfordshire County Council: http://www.hertsdirect.org/services/healthsoc/supportforadults/moneymatters/ncochp/ndp/.

Age UK provides a whole range of support for the elderly http://www.ageuk.org.uk/

 

Alzheimer’s

Alzheimer’s disease is the most common type of dementia, affecting almost 500,000 people in the UK. The exact cause of Alzheimer’s disease is unknown, although a number of things are thought to increase the risk of developing the condition.

Useful websites:

http://www.nhs.uk/Conditions/Alzheimers-disease/Pages/Introduction.aspx
http://www.alzheimers.org.uk/
http://www.alzheimersresearchuk.org/
There is also a useful chatroom – http://forum.alzheimers.org.uk/

 

 

Parkinson’s

Parkinson’s disease is a condition in which part of the brain becomes progressively damaged over many years. The three main symptoms of Parkinson’s disease are: tremor (involuntary shaking of particular parts of the body), slow movement, stiff and inflexible muscles

A person with Parkinson’s disease can also experience a wide range of other physical and psychological symptoms, including depression, constipation, problems sleeping (insomnia), loss of sense of smell (anosmia) and memory problems.

Useful websites:

http://www.nhs.uk/conditions/parkinsons-disease/pages/introduction.aspx
http://www.parkinsons.org.uk/

 

 

Dementia

Dementia is a syndrome (a group of related symptoms) associated with an ongoing decline of the brain and its abilities. The risk of developing dementia increases with age and the condition usually occurs in people over the age of 65. Symptoms of dementia include problems with memory loss, thinking speed, mental agility, language, understanding, judgement

People with dementia can become apathetic or uninterested in their usual activities, and have problems controlling their emotions. They may also find social situations challenging, lose interest in socialising, and aspects of their personality may change.

Useful websites:

http://www.dementiauk.org/ http://www.alzheimers.org.uk/dementiauk
http://www.alzheimers.org.uk/dementiauk
http://www.dementiaaction.org.uk/

 

 

Stroke

A stroke is a serious, life-threatening medical condition that occurs when the blood supply to part of the brain is cut off. Strokes are a medical emergency and urgent treatment is essential because the sooner a person receives treatment for a stroke, the less damage is likely to happen.

If you suspect that you or someone else is having a stroke, phone 999 immediately and ask for an ambulance.

 

Useful websites:

http://www.nhs.uk/Conditions/Stroke/Pages/Introduction.aspx
https://www.stroke.org.uk/

 

If you or someone you know has recently had a stroke, the following information sources may help with the recovery process:

http://www.nhs.uk/conditions/Stroke/Pages/recovery.aspx
https://www.stroke.org.uk/finding-support/our-life-after-stroke-services
https://www.stroke.org.uk/sites/default/files/the_road_to_recovery.pdf
http://www.arni.uk.com/

Motor Neurone Disease

Motor neurone disease is a rare condition that progressively damages parts of the nervous system. This leads to muscle weakness, often with visible wasting.

Motor neurone disease, also known as amyotrophic lateral sclerosis (ALS), occurs when specialist nerve cells in the brain and spinal cord called motor neurones stop working properly. This is known as neurodegeneration.

Some useful websites:

http://www.mndassociation.org/

Struggling to make end of life decisions? This leaflet may help:
http://www.mndassociation.org/life-with-mnd/publications-pabmnd/end-of-life-guide/